by Daniel Avesar PhD
Experiencing My Brain is a podcast devoted to detailed discussion with brain injury survivors about their experiences, problems, and ways that they have found to navigate their lives. These stories are important to help the non brain injured world make sense of the problems that come with brain injury.
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🇺🇲
Publishing Since
11/23/2021
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March 6, 2025
<p>With the improvement of brain injury problems, people talk about neuroplasticity, but the re-learning, re-building, re-gaining, and re-developing of what you injured after brain injury is a process itself that is difficult to do and difficult to explain. </p><p><br></p><p>In this discussion with Jamie MoCrazy we get into great details about her remarkable story and the road to improve what got injured in her. We discuss how difficult the work and effort are, to actually “chip away” and improve those invisible brain injury problems, how complex these invisible problems are, and how change takes great effort and time. Also how psychological and emotional problems combine with the invisible brain injury problems even when those brain injury problems have improved.</p><p><br></p><p>Jamie shares about her experiences with the “evolution” of brain injury changes, in which different capacities returned over time. Time over the scale of years, and also the misunderstandings that surrounds all these invisible problems.</p><p><br></p><p>What Jamie shares about her support to improve are great example of why having the right support is so important, and also how difficult it is to rebuild, regain, relearn, redevelop, even when you have support. </p><p><br></p><p>One more thing about the problems that Jamie describes, the invisible ones. What she says is very true about brain injury in general, about how difficult it is to do what was once basic and automatic. It would be helpful for others to realize this and figure out how to be more supportive for every brain injured person. Jamie is still fighting to help build the right awareness and the right resources for brain injury.</p><p><br></p><p> Re-learning, re-building, re-ganining, re-developing (how ever you spell these words, are better terms for explaining the nature of the long process to improve after brain injury. </p><p><br></p><p>Check out the Jamie MoCrazy podcast and website for info about her documentary and all her brain injury advocacy work:</p><p><br></p><p><a href="https://www.mocrazystrong.org/" target="_blank" rel="ugc noopener noreferrer">https://www.mocrazystrong.org/</a></p><p><br></p><p><a href="https://www.mocrazystrong.org/podcast/" target="_blank" rel="ugc noopener noreferrer">https://www.mocrazystrong.org/podcast/</a></p><p><br></p><p>- - -</p><p>Experiencing My Brain is a podcast devoted to detailed discussion with brain injury survivors about their experiences, problems, and ways that they have found to navigate their lives. These stories are important to help the non brain injured world make sense of the problems that come with brain injury.</p><p>- - -</p><p>Disclaimer:</p><p>The views and opinions shared in this podcast should be looked at as the views of brain injury survivors and not as medical or clinical advice. Always seek the advice of a qualified health care professional with any brain injury problem.</p><p><br></p>
January 22, 2025
<p>Alexithymia is a psychological condition characterized by an inability to identify, understand, and express one's own emotions. Alexithymia is very common with brain injury. </p> <p><br></p> <p>In this podcast Debbie and I get into alexithymia. We also talk about alexithymia in the context of brain injury and all the other problems that stem from having an injured brain. Alexithymia is a state that is difficult to describe. It feels like feelings are not a part of you or don't exist. </p> <p><br></p> <p>This is the second recording with Debbie. Her and her husband Scott share a lot about brain injury in a previous episode #23, titled: Can We Get Others To Get "It."</p> <p><br></p> <p>This podcast episode here is a follow up from a lecture by Dr. Dawn Neumann on alexithymia and brain injury. In that lecture (link below), Dr. Neumann shares bout her research and also Debbie was a subject in two of Dr. Neumann's studies. She offers a great perspective from "the subject's" perspective.</p> <p><br></p> <p>Please check out that lecture here:</p> <p><br></p> <p>https://www.youtube.com/watch?v=Wb1D5HfCyPM</p> <p><br></p> <p>Debbie and I have spoken a lot about our brain injury issues. The cover art for this episode is her new tattoo, a sunflower. The sunflower is the symbol for Hidden Disabilities including brain injury. Her tattoo was inspired by the discussion in the last episode of Experiencing My Brain.</p> <p><br></p> <p>https://podcasts.apple.com/us/podcast/the-kicked-off-the-bench-swamp-moving-through-a/id1596998070?i=1000679856127</p> <p><br></p> <p>- - -</p> <p>Experiencing My Brain is a podcast devoted to detailed discussion with brain injury survivors about their experiences, problems, and ways that they have found to navigate their lives. These stories are important to help the non brain injured world make sense of the problems that come with brain injury.</p> <p><br></p> <p>- - -</p> <p><br></p> <p>Disclaimer:</p> <p><br></p> <p>The views and opinions shared in this podcast should be looked at as the views of brain injury survivors and not as medical or clinical advice. Always seek the advice of a qualified health care professional with any brain injury problem.</p>
December 10, 2024
Host David explores brain injury concepts and analogies, including 'getting kicked off the bench,' 'moving through a swamp,' and 'getting pulled behind a boat,' to help loved ones understand the relearning process.
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