by Canadian Fabry Association
<p><b>The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. </b></p><p><br /></p><p><b>Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space. </b></p><p><br /></p>
Language
🇺🇲
Publishing Since
1/12/2024
Email Addresses
1 available
Phone Numbers
0 available
March 18, 2025
<p>How does Fabry disease impact mental health? What role do anxiety, pain management, and emotional well-being play in the patient journey? Julia Alton and Christine Leyland explore these questions, discussing coping strategies like mindfulness and cognitive behavioral therapy. How can acceptance and self-compassion make a difference? Why is psychotherapy so important? They also dive into the Be Rare, Be You campaign, the challenges of tough decisions, and the vital role caregivers play. </p>
February 19, 2025
<p>Julia Alton and Jennifer Siedman delve into the complexities of decision-making, particularly in the context of chronic illness and rare diseases. They explore the concept of decision fatigue, the emotional toll it takes on caregivers and patients, and the importance of understanding one's decision-making style. Jennifer shares insights from her personal experiences and professional expertise, emphasizing the need for emotional awareness and support in the decision-making process. The discussion also highlights the challenges of navigating clinical trials and the significance of shared decision-making in fostering empowerment and confidence.</p>
December 6, 2024
Christiane Auray-Blais shares her expertise on the critical role of biomarkers in diagnosing and treating Fabry disease, emphasizing the importance of early detection and proactive patient communication.
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