by Two Bendy Mommas
Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.
Language
🇺🇲
Publishing Since
8/1/2022
Email Addresses
1 available
Phone Numbers
0 available
April 12, 2025
<p>Keywords</p><p>brain, dysautonomia, executive functioning, personal journey, daily challenges</p><p><br></p><p><br></p>
March 29, 2025
<p><strong>If you are able, Shelli recommends watching this episode</strong></p><p><strong>Summary</strong></p><p>In this episode, Luna discusses a groundbreaking study linking joint hypermobility and anxiety, highlighting the neurological underpinnings of these conditions. </p><p>Shelli discusses aEDS, hip dysplasia, and shares more candid content from sessions with her physical therapist.</p><p><strong>Keywords</strong></p><p>hypermobility, anxiety, medical gaslighting, Ehlers-Danlos syndrome, dysplasia, neurological research, chronic pain, personal experiences, recovery, support</p><p><strong>References</strong></p><p>Kamboureli, Christina Niki; Rae, Charlotte; Gould Van Praag, Cassandra; Harrison, Neil A; Garfinkel, Sarah N; Critchley, Hugo; et al. (2025). <a href="https://sussex.figshare.com/articles/journal_contribution/Neural_processes_linking_joint_hypermobility_and_anxiety_key_roles_for_the_amygdala_and_insular_cortex/28350236/1?file=52143758" target="_blank" rel="ugc noopener noreferrer">Neural processes linking joint hypermobility and anxiety: key roles for the amygdala and insular cortex. </a>University of Sussex. Journal contribution.</p><p><a href="https://www.ehlers-danlos.com/aeds/" target="_blank" rel="ugc noopener noreferrer">EDS Society info on aEDS</a> </p><p><a href="https://www.ncbi.nlm.nih.gov/snp/rs1061970#clinical_significance" target="_blank" rel="ugc noopener noreferrer">aEDS VUS info</a></p><p>Links to specific assistive devices along with phots will be posted soon - it's Shelli's birthday weekend and the weather is looking good!</p><p><br></p><p><br></p>
March 15, 2025
<p><strong>C is for Complicated</strong></p><p>In this episode, Shelli shares candid, unscripted video diaries that cover the time period leading up to and one week following hip surgery in September 2024.</p><p><strong>Content Warning </strong>- at around 44:44 there is video footage of bandage removal and several images of my incisions</p><p><strong>Keywords</strong></p><p>Ehlers-Danlos Syndrome, Hypermobility, Chronic Pain, Surgery, Recovery, Personal Health, Medical Journey, Patient Experience, Health Awareness, Dysautonomia</p><p><strong>References</strong>:</p><p><a href="https://openeyepix.org/complicated" target="_blank" rel="ugc noopener noreferrer">Complicated</a></p><p><br /></p>
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