by Dr. Ahmet Uluer and Lauren Harvey
Aging and cystic fibrosis are words you don’t always hear in the same sentence — but on this podcast, you’ll hear them all the time. Thanks to medical advances, many people with CF are living longer, and we thought it was time to get into some real conversations about what living longer with CF means—the good and the not so good. We’ll bring in expert guests and people from all walks of CF to talk about different aspects of the challenge — and hopefully a little authenticity and laughter on the side. After each guest, stay tuned for our “What’s up with that?” segment, when we have honest conversations about what we learned from each guest.
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Publishing Since
2/14/2025
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March 31, 2025
<p>In this episode of It’s a Lung Story, we dive into the complex relationship between mental health and cystic fibrosis. Joined by Dr. Anna Georgiopoulos, a psychiatrist at Mass General Brigham and an expert in CF mental health, we explore how medical advancements have transformed physical health without always improving mental well-being, the emotional challenges of aging with CF, and the evolving dynamics of caregiver relationships.</p> <p>Dr. Georgiopoulos shares insights from groundbreaking research, including the upcoming RETRIAL study, which examines how newer CF modulators affect mental health. We also discuss survivor’s guilt from an unexpected angle, and we get into the reality that looking healthy doesn’t mean living without struggle.?</p> <p>We’ll also talk about cheating on mental health screenings, dancing with our dogs, and the evolution of swear words in Taylor Swift's discography. Mental health is serious—but that doesn’t mean we can’t have a bit of fun along the way.<br><br> Dr. Georgiopoulos has served as consulting child, adolescent and adult psychiatrist at the Massachusetts General Hospital CF Center since 2005. She is an Associate Professor of Psychiatry at Harvard Medical School and leads clinical trials in CF mental health and palliative care. Dr. Georgiopoulos is chair of the CF Foundation Prioritizing Research in Mental Health (PRIME) working group, chair of education and training for the CF Foundation Mental Health Advisory Committee, and US liaison to the European CF Mental Health in the Era of CFTR Modulators Working Group.<br><br> <p>RESOURCES AND MENTIONS: </p> <p>CF Foundation’s Mental Health Guidelines & Screening Tools:</p> <p>https://thorax.bmj.com/content/71/1/26
February 27, 2025
February 14, 2025
Welcome to the launch trailer for It's a Lung Story! In this podcast, we explore the realities of aging with cystic fibrosis (CF) in the era of modulators and medical advancements. Through expert interviews, personal narratives, and compelling storytelling, we get into real conversations about both the challenges and the resilience of the CF community. Whether you have CF, know someone who does, are a caregiver, healthcare provider, medical student, or just enjoy a good pun as a podcast name, we have something for you.
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