每集邀請1位紅斑性狼瘡病友與1位專家對談，訴說紅斑性狼瘡的故事與傳遞相關知識。
Language
🇨🇳
Publishing Since
3/24/2021
Email Addresses
1 available
Phone Numbers
0 available
February 19, 2024
本集邀請紅斑性狼瘡病友Wendy與Rosa來講故事。透過她們的對話，學習生病後該怎麼走出陰霾，以不同的視野看向生命的歷程，歡迎大家收聽Wendy與Rosa的故事。 本集由聯合勸募贊助播出。請大家在收聽後填寫google表單問卷，您的意見可以幫助協會繼續做更好的節目，第16集的問卷：https://forms.gle/3vGgFYozHhEaJxJ5A
November 28, 2023
EP15來奈的故事ft. 魷魚絲 本集邀請紅斑性狼瘡病友來奈和她的朋友魷魚絲來講她們的故事。來奈因關節問題造成日常生活行動不便，她發生什麼事？另外，她的朋友魷魚絲又是如何幫助她？歡迎大家收聽來奈和她的朋友魷魚絲的故事。 本集由聯合勸募贊助播出。請大家在收聽後填寫google表單問卷，您的意見可以幫助協會繼續做更好的節目，第15集的問卷：https://forms.gle/whQajK5qmXrqmCzE8
June 26, 2023
本集接著上一集繼續邀請紅斑性狼瘡病友朱玫來講她的故事。朱玫姊經歷數次手術，面對手術評估的考量又是什麼？無法處理的病痛又有什麼故事？歡迎大家收聽朱玫的故事。 本集由聯合勸募贊助播出。請大家在收聽後填寫google表單問卷，您的意見可以幫助協會繼續做更好的節目，第14集的問卷：https://forms.gle/mLcBhRGKQTdp8iE89
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