罕見疾病基金會自2015年，與愛樂電台合作製播《螢火蟲故事島》廣播劇，並創作成一系列生動活潑的故事繪本及有聲書，走入校園、親近學童；同時在「財團法人觀樹教育基金會」的贊助支持下，重製爲Podcast 節目，期盼帶領小朋友們認識不同類型的罕見疾病，尊重差異，理解幫助他們不再孤單。 🌟官網：https://www.tfrd.org.tw/tfrd/home 🌟FB：https://reurl.cc/qVEbo0 🌟IG：https://www.instagram.com/tfrd_taiwan/ -- Hosting provided by <a href="https://www.soundon.fm/" target="_blank">SoundOn</a>
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7/8/2024
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August 4, 2024
亮亮：「哈囉！小朋友，我是不會發光的螢火蟲，同時也是保護罕見疾病小朋友的守護精靈亮亮，又到了說故事時間囉！Podcast前的小朋友，今天亮亮要跟大家說的故事是發生在一個名字叫「鯨魚」的小島上，熱鬧的海上嘉年華即將展開。今天，小傑和兩位好朋友進行了一場精采的冒險體驗，究竟發生什麼有趣的故事呢？請大家坐好，跟亮亮一起一探究竟吧！」 以上節目由「財團法人觀樹教育基金會」贊助製作。 -- Hosting provided by <a href="https://www.soundon.fm/">SoundOn</a>
August 3, 2024
亮亮：「哈囉！小朋友，我是不會發光的螢火蟲，同時也是保護罕見疾病小朋友的守護精靈亮亮，又到了說故事時間囉！Podcast前的小朋友，今天亮亮要跟大家說的故事主角是古拉拉裁縫店的女兒－露娜。玩具王國每五年會辦理一次盛大的嘉年華會，現場會票選出王國最閃亮的人，但露娜身體會不定期的莫名腫脹、長環狀紅斑，就像皮膚長了顆小氣球，愛漂亮的露娜每當看到自己身上長了顆小氣球，就覺得自己像氣球人一樣，難過的一直哭，不敢見任何人，露娜的身體到底發生什麼事了呢？露娜最後能參加嘉年華會嗎？請大家坐好，聽亮亮說故事囉！」 以上節目由「財團法人觀樹教育基金會」贊助製作。 -- Hosting provided by <a href="https://www.soundon.fm/">SoundOn</a>
August 2, 2024
亮亮：「哈囉！小朋友，我是不會發光的螢火蟲，同時也是保護罕見疾病小朋友的守護精靈亮亮，又到了說故事時間囉！Podcast前的小朋友，今天亮亮要跟大家說的故事主角是韋戈，韋戈是一位模範警察，盡心盡力守護著祥和市鎮的大小事，身為人民保母的韋戈，是如何擁有源源不絕的活力呢？究竟韋戈隱藏著什麼祕密呢？請大家坐好，用心聆聽，和亮亮一起找出韋戈的神祕超能量吧！」 以上節目由「財團法人觀樹教育基金會」贊助製作。 -- Hosting provided by <a href="https://www.soundon.fm/">SoundOn</a>
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