by The Dudes
The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!
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Publishing Since
12/7/2016
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April 21, 2025
<p>In classic Two Disabled Dudes fashion, the episode opens with a hilariously painful recounting of bloodwork gone wrong. Kyle survives a multi-day ordeal involving broken systems, pre-dawn wake-ups, and a forgotten ID, while Sean’s appointment gets derailed by a national holiday his lab forgot existed. Moral of the story: get your labs done early—or prepare for a side quest no one asked for.</p><p>Things shift from comedy to clinical trials with guest Kendall Davis, a rare disease advocate and engagement strategist who knows how to bridge the gap between pharma and real life. She shares how meaningful patient input—before a trial starts—can make or break its success, and why things like meals, Wi-Fi, and basic communication should never be afterthoughts.</p><p>Kendall doesn’t shy away from the big questions either—like why the FDA offers “guidance” instead of hard rules, and how that leaves too much room for interpretation. It’s clear she’s doing the work to make trials more human, but whether the industry will keep up is a cliffhanger we’re still waiting to resolve.</p><p><strong>Links and Resources</strong></p><ul><li><a href="https://www.iconplc.com/" rel="noopener noreferrer" target="_blank">ICON</a></li><li><a href="https://teamtelomere.org/" rel="noopener noreferrer" target="_blank">Team Telomere</a></li></ul><br/>
April 14, 2025
<p>In this powerful and heartfelt episode, we sit down with <strong>Erin</strong>, founder of the Rae of Hope Foundation, to talk about caregiving, community, and what it means to find joy even when life is hard.</p><p>Erin shares her family’s journey following her daughter Reagan’s epilepsy and cerebral palsy diagnoses, how caregiving shaped her 30s, and how she’s now carving out space for herself as Reagan becomes more stable. We dive into the real stuff—guilt, resilience, and the healing power of connecting with people who just get it.</p><p><strong>Links & Resources:</strong></p><ul><li><a href="https://www.reaofhopeforacurefoundation.com/" rel="noopener noreferrer" target="_blank">Rae of Hope website</a></li><li><a href="https://www.instagram.com/rea_of_hope/" rel="noopener noreferrer" target="_blank">Follow Rae of Hope on Instagram</a></li><li><a href="https://runsignup.com/Race/PA/Wayne/ReagansRun" rel="noopener noreferrer" target="_blank">Reagan’s Run</a></li></ul><br/>
April 7, 2025
<p>In partnership with Jett Foundation, we roll into an inspiring conversation with a powerhouse panel of guests who prove that nothing—not even a ridiculously expensive adaptive wheelchair—can keep them from chasing their dreams. From power soccer to adaptive paragliding (yes, that’s a thing!), our guests share how nonprofits, grants, and a little creative Googling can help make adventure accessible.</p><p>But it's not just about the gear—it's about mindset. Whether it’s treating life like a video game (level 29 and counting!), finding joy in teaching, meditating, or simply savoring a slice of pizza, these folks remind us that happiness is about perspective. Challenges? Sure. But as they say, keep moving forward, embrace the highs, and never underestimate the power of a good support system (or a really good cup of coffee).</p><p>Special thanks to the Jett Foundation and everyone making life a little more accessible, one grant, goal, and friendship at a time. Keep living with urgency, folks—because the next level is right around the corner! 🚀♿🎉</p><p><strong>Links and Resources (mentioned in this episode)</strong></p><ul><li><a href="https://www.jettfoundation.org/" rel="noopener noreferrer" target="_blank">Jett Foundation</a></li><li><a href="https://www.curesma.org/" rel="noopener noreferrer" target="_blank">Cure SMA</a></li><li><a href="https://www.parentprojectmd.org/" rel="noopener noreferrer" target="_blank">Parent Project Muscular Dystrophy (PPMD)</a></li><li><a href="https://cureduchenne.org/" rel="noopener noreferrer" target="_blank">Cure Duchenne</a></li><li><a href="https://mhschoolfoundation.org/" rel="noopener noreferrer" target="_blank">Mass Hospital School</a></li></ul><br/>
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