by A Friend for the Long Haul
Struggling with Long Covid, ME/CFS or chronic illness? "A Friend for the Long Haul" is a long covid podcast that aims to be a supportive companion. ️ This long covid podcast can help you gain insights, find humor, & discover shared stories within a community that understands. Each episode features a long Covid patient or ally with the aim of helping you feel less isolated, because you are not alone.
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🇺🇲
Publishing Since
3/24/2024
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February 3, 2025
<p>Hi! I remain alive! Here’s a special announcement for season 3 (!) of A Friend for the Long Haul! 💜💝</p>
December 24, 2024
<p>Welcome to the 1st Annual Long Covid Sickstravaganza Holiday Episode! This episode features contributions from a few different lovely folks:</p> <ul> <li>Segment 1 features my 7 year old. We discuss what he really wants for the holidays - which is apparently for me to stop being so hard on myself. Oof.</li> <li>For Segment 2, The <a href="https://www.longcovid.org/support/long-covid-choir" target="_blank" rel="ugc noopener noreferrer">Long Covid Choir</a> kindly shared a recording of a holiday song with us, called <strong>Alles Schweiget</strong>! Included is an introduction from choir director Merel van der Knoop. You can watch a video the <a href="https://www.instagram.com/longcovidchoir/" target="_blank" rel="ugc noopener noreferrer">choir </a>put together on <a href="https://www.youtube.com/watch?v=HqwGFEri_bY" target="_blank" rel="ugc noopener noreferrer">YouTube</a>. Here are the lyrics in German and English: Alles schweiget, Nachtigallen locken mit süßen Melodien Tränen ins Auge, Schwermut ins Herz. All is Silent All is silent nightingales draw with sweet melodies tears in the eye heaviness in the heart. Music attrib. Haydn/Mozart Photography: Janne Cecilie Bjerkeland Produced: Merel van der Knoop</li> <li>In Segment 3, I have a nice long chat with <a href="https://www.liorocean.com/" target="_blank" rel="ugc noopener noreferrer">Lior Ocean</a> about what a crock new year's resolutions are, and we discuss self compassion and showing ourselves<a href="https://www.instagram.com/liorocean/" target="_blank" rel="ugc noopener noreferrer"> loving kindness </a>in 2025</li> <li><a href="https://www.instagram.com/joeglasgowshow/" target="_blank" rel="ugc noopener noreferrer">Segment 4 features Joe Glasgow, who</a> contributed a story called If These Pillows Could Talk</li> <li><a href="https://www.ninastorey.com/" target="_blank" rel="ugc noopener noreferrer">Nina Storey</a> kicked my ass with shares a demo of a new song called Shadows Fall (Love Myself). Nina said: "Let your audience know you inspired me after we spoke after your iron infusion, and every person dealing with a chronic illness and chronic pain or disability inspires this song too. We are all warriors."</li> </ul> <p>Lyrics:</p> <p> Shadows Fall (Love Myself) Written by Nina Storey </p> <p><strong>Verse I</strong></p> <p>so long alone </p> <p>surrounded by the noise </p> <p>still on my own</p> <p>scattered through an empty void</p> <p>but get up and I show up</p> <p>cause I've grown up in the dark</p> <p>and I'm bleeding but I'm breathing</p> <p>and I know I'm come so far</p> <p><strong>Chorus</strong></p> <p>shadows fall from yesterday</p> <p>what I've lost is far away</p> <p>where to go when all the love is gone</p> <p>when everyone has walked away </p> <p>and I alone have got to stay </p> <p>I learn to love myself and carry on</p> <p><strong>Verse II</strong></p> <p>take my life in minutes count them each a win</p> <p>when I reach the end of one, then I start to count again</p> <p>so I'll fake it, 'till I make it</p> <p>cause most don't seem to care</p> <p>but I'm ready and I'm clawing my way back for every breath of air</p> <p><strong>Bridge</strong></p> <p>I survived a stormy ride across my soul</p> <p>you can't break me</p> <p>iron veins have made me whole</p> <p><strong>Chorus</strong></p> <p>shadows fall from yesterday</p> <p>what I've lost is far away</p> <p>where to go when all the love is gone</p> <p>when everyone has walked away </p> <p>I alone have got to stay learn to love myself and carry on </p> <p>Thank you all for contributing, and thank you listeners for supporting this endeavor this year! I hope you have a lovely holiday season!</p> <p>To further spread some joy, there's a pretty decent giveaway happening for this special episode! Prizes are: a free month of the Calm app (not sponsored!), two free virtual dog training Sessions from <a href="https://www.instagram.com/rayandstormi/" target="_blank" rel="ugc noopener noreferrer">Ray of Lighthouse Dog Training</a>, a copy of Joe Glasgow's new book - <a href="https://www.amazon.com/Be-Hero-Joe-Glasgow/dp/B0DP7LD2VZ/ref=sr_1_1?crid=2PIO3IJK88P1E&dib=eyJ2IjoiMSJ9.XGlMMOHy4BtwE6C9YwpHgJXFpVwkYBIZ-8l_ADey9V_vwFKxSi2wYqwIeNDcbUELTfaMOEkfWJUPxdUsqXYY0datKIIlEotPk6CmVxZ1pEICWoVmOSXzk_6k-rrIqdib--RiPMLPCwjjyyfEIioIgcmz_QPSvlXA6M1oTJMfXDvCQAQ_nJjn_ipSeYNvGYqMRqPgV5_Il7KvCyNUs7Mg3ZiI_iZS8EARlUeCWaDKqqc.NF-NtiWukExhwC0u9cjD_EiSQzhJKINY2XbVrii68NI&dib_tag=se&keywords=be+a+hero+joe&qid=1734997571&s=books&sprefix=be+a+hero+joe%2Cstripbooks%2C184&sr=1-1" target="_blank" rel="ugc noopener noreferrer">Be a Hero</a>, a signed copy of <a href="https://www.amazon.com/Five-Gifts-Discovering-Strength-Disaster/dp/0757320449/ref=asc_df_0757320449/?tag=hyprod-20&linkCode=df0&hvadid=692875362841&hvpos=&hvnetw=g&hvrand=18424312140050024277&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9028898&hvtargid=pla-2281435176698&psc=1&mcid=3da35fb67791352ba0696554d5c1d702&hvocijid=18424312140050024277-0757320449-&hvexpln=73&gad_source=1" target="_blank" rel="ugc noopener noreferrer">The Five Gifts: Discovering Hope, Healing and Strength when Disaster Strikes</a> from <a href="https://www.instagram.com/laurienadel/" target="_blank" rel="ugc noopener noreferrer">Dr. Laurie Nadel</a>, and a full copy of <a href="https://www.instagram.com/bloom19official/" target="_blank" rel="ugc noopener noreferrer">Chef Taryn </a>of <a href="https://stan.store/Bloom-19?fbclid=PAZXh0bgNhZW0CMTEAAabJZmcFyFoB2F4MotEAHttnFduVJSzDsDLD-YtyXyTy8joNpEqID1v-q1Q_aem_qhabr3PfizbqQfMJF2Z9rQ" target="_blank" rel="ugc noopener noreferrer">Bloom19's new Spoonie Cookbook</a>! Chef Taryn also created a special holiday recipe for this episode, <a href="https://www.instagram.com/p/DDM92eFMwUJ/" target="_blank" rel="ugc noopener noreferrer">peppermint patties</a> that are dairy free, gluten free, egg free, and refined sugar free! To enter, comment anything on this episode - also, tell me if you have a dog - or go to the giveaway post on my Instagram and comment, like, share, and tag friends for additional entries. Winners will be drawn on 12/29/2024. </p> <p>Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on <a href="https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392" target="_blank" rel="ugc noopener noreferrer">Spotify</a>. If you'd like to support this low budget/high love podcast, you can check out my<a href="https://www.bonfire.com/store/a-friend-for-the-long-haul/" target="_blank" rel="ugc noopener noreferrer"> Bonfire shop for silly long covid apparel </a>or my <a href="https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share" target="_blank" rel="ugc noopener noreferrer">Amazon wishlist,</a><br /></p>
December 17, 2024
<p>Welcome to season 2 episode 12 of A Friend for the Long Haul - A Long COVID Podcast! This week's guest is Katie Drackert, who most of you will know as @kd_kinetic. Katie is the founder of Clear the Air ATX, a volunteer-led, community resource library that lends out air purifiers and other COVID mitigation tools for free to artists, musicians, and independent event producers in Austin, Texas - where I lived for many years and sadly had to leave due to my COVID experience.</p> <p>In the pre-rona days, Katie primarily worked full time as a performance artist. When Omicron hit, things changed. In this episode, we discuss our personal experiences with chronic health issues, including long COVID, and the challenges we face managing our symptoms while advocating for ourselves and others. We share our experiences with medical treatments, their emotional impacts, and the importance of community support and self-care. The conversation also touches on our backgrounds - which are really similar despite our age difference (I am an old) as well as our many shared interests, and future plans for advocacy work and creative projects that we are both plotting.</p> <p>By the end of this episode, I became fully obsessed with Katie, and I think you will, too! You can find out more about Katie's advocacy work in so many places! Check out: Co-created a Zine with<a href="https://thesicktimes.org/2024/12/02/special-edition-zine-one-year-of-the-sick-times/" target="_blank" rel="ugc noopener noreferrer"> The Sick Times</a>, Featured in <a href="https://www.bioworld.com/articles/696414-us-fda-turns-to-patients-to-deepen-understanding-of-long-covid?v=preview" target="_blank" rel="ugc noopener noreferrer">BioWorld Med Tech</a>, <a href="https://www.teenvogue.com/story/clean-air-club-organizing-covid-safer-shows" target="_blank" rel="ugc noopener noreferrer">Teen Vogue</a>, <a href="https://cbsaustin.com/news/local/lawmakers-consider-banning-masks-at-protests" target="_blank" rel="ugc noopener noreferrer">CBS Austin - Mask Bans</a>, <a href="https://cbsaustin.com/news/local/homeless-camping-ban-could-be-on-austins-may-ballot" target="_blank" rel="ugc noopener noreferrer">CBS Austin - Homeless Camping Ban</a>, <a href="https://www.texasobserver.org/long-covid-texas-clearing-the-air/" target="_blank" rel="ugc noopener noreferrer">Texas Observer</a>, <a href="https://spectrumlocalnews.com/tx/austin/news/2020/11/11/austin-artist-reacts-to-pfizer-vaccine-progress" target="_blank" rel="ugc noopener noreferrer">Spectrum Local News</a>, <a href="https://www.yesmagazine.org/issue/access/2024/05/23/reclaiming-our-air" target="_blank" rel="ugc noopener noreferrer">YES! Magazine</a>, <a href="https://48hills.org/2024/10/opinion-is-it-time-for-an-act-up-for-long-covid/" target="_blank" rel="ugc noopener noreferrer">48 Hills</a>, <a href="https://www.kut.org/austin/2020-08-13/austin-cuts-and-reinvests-5-percent-of-police-budget-promises-more-changes-over-the-next-year" target="_blank" rel="ugc noopener noreferrer">KUT Austin</a>, and <a href="https://docs.google.com/document/d/1Tnr60rn4lQYQpkAv21Q6wgpRBrnJNVjT3jP9xApYvAo/edit?usp=sharing" target="_blank" rel="ugc noopener noreferrer">Austin American Statesman. </a> Follow<a href="https://www.instagram.com/kd_kinetic/" target="_blank" rel="ugc noopener noreferrer"> Katie on Instagram</a> </p> <p>Follow <a href="https://www.instagram.com/cleartheair.atx/" target="_blank" rel="ugc noopener noreferrer">Clear the Air ATX on Instagram</a></p> <p><a href="https://linktr.ee/clear.the.air.atx?fbclid=PAZXh0bgNhZW0CMTEAAaYvxje9MZq-mVJdbGYdvG2phCWYH4mM08IY_wkShm7uF-D6OWnoXpP2stI_aem_tshX9ZWqHNuYwlX1EVeb7w" target="_blank" rel="ugc noopener noreferrer">Clear the Air ATX's Linktree </a>is full of so many resources and ways you can donate and support the org!</p> <p>Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: <a href="https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K" target="_blank" rel="ugc noopener noreferrer">https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392</a></p> <p>If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: <a href="https://www.bonfire.com/store/a-friend-for-the-long-haul/" target="_blank" rel="ugc noopener noreferrer">https://www.bonfire.com/store/a-friend-for-the-long-haul/ </a>or my Amazon wishlist: <a href="https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share" target="_blank" rel="ugc noopener noreferrer">https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share</a><br /></p> <p><br /></p>
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