by Jo Joyner and Lucy McDonald
Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.
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Publishing Since
10/2/2023
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December 19, 2024
<p>In the last episode of the year, we talked to Lucy from Parenting_PANDAS on Instagram. Lucy shares her story with her 10,000-strong community, charting the hope and despair of life as a PANDAS parent. Originally posting about Pathological Demand Avoidance, she did not consider the diagnosis until one of her followers suggested PANDAS. Sadly, this is not an uncommon route to diagnosis! Since then, her daughter has had antibiotic treatment and is bumpily recovering. </p> <p>It is a testament to her passion for raising awareness that Lucy manages to post about her family's journey, offering support, parenting hacks (dopamine bag, anyone?!), and hope for PANS/PANDAS parents worldwide.</p> <p>Her insights and commitment are a wonder, and we are thrilled she is on this week’s PANS/PANDAS Stories.</p> <p>As always, please like and share the podcast to raise awareness.</p> <p>Happy Christmas and 2025, everyone!</p>
December 2, 2024
Immunologist Dr Denis Bouboulis shares insights on long-term treatment for PANS/PANDAS, highlighting the link between Covid and underlying vector-borne infections like Lyme disease.
November 14, 2024
Education Expert Tina Coope from PANS/PANDAS UK shares practical tips on how to support children with PANS/PANDAS in schools, empowering teachers and families to provide effective help.
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